Surgery #9

Okay! So, I know I have not been very good in updating Scotty's blog lately. But, here is the latest. Since Scotty got to come home on December 8th he has had some discomforting pain in his stomache which is caused by the shunt. We had him x-rayed & they found that the tip of the shunt was lodged between his liver & diaphram. Dr. Brockmeyer decided to give it a while to see if it would move on it's own but, it failed to do so. Today Scotty had a minor surgery to relocate the shunt tube. He is doing good but, just a little sore. He said this surgery was easy compared to the other 8. He is such a good kid & he is very strong. He will have a check up in a month & from there he will be good until June for his MRI. The last CT scan showed that his tumor is stable & the shunt is working. Thanks for your continued support & prayers.

Scotty's set-back

Well, it is confirmed that Scotty does have mono. He continues to have fevers & swollen lymph nodes so bad that he can't move his neck. They ended up giving him morphine to ease his pain last night. It seems as though we take 1 step forward and 3 steps back. Were all doing our best to stay strong & positive but, I have to admit it's wearing on us. He wants to go home so badly & yet has another set back. I told the infectious disease team that Scotty has always been very healthy and in 1 yr it has all changed. I believe God has a plan for Scotty we just don't know what that is right now.

It's so hard to believe how much our lives can change in one day. Just looking back a few months ago & where we are now. I want to see the light at the end of the tunnel but, it's still dark. One day we think it's open & the next day it closes. I don't want to sound negative I just want to be done with this nightmare. I feel like screaming "MERCY, MERCY, MERCY!" "Please stop we can't take anymore." Sorry, I had a moment there and it had to be said. "He will get pass this, he will be well soon, & we will all be together soon as a family." Amen