Scotty get's to come home! Thank You Dr. Brockmeyer!

Dr. Brockmeyer says Scotty can go home but, needs to come back on Thursday for another CT scan. He may still need to have the permanent shunt but, Dr is willing to give him another week to see if ventacles will start working more. Let's pray that it does but, for now we are all home together and can get back to some what normal. Before we left the hospital Scotty wanted to get a picture with the Doctor he say's saved his life. We agree Dr Brockmeyer is amazing and we are grateful to have him as our surgeon.

"Not out of the woods just yet."

Day 9 we are still in the hospital w/Scotty. This week has been quite the roller coaster ride. Scotty does well one day and not so great the next. He is being monitored very closely by the NTU unit. They clamped his EDT on Monday and are watching to see if Scotty' brain will be able to handle the fluid that is in his brain with out the EDT. If, it doesn't he will have to have surgery. They already did a CT scan yesterday and that showed a little bit of swollen glands but, they want to give it more time they will do another one on Friday. Today Scotty got nauseated, is very tired, and not eating. This is hopefully a down day and we are hoping he feels better this afternoon. We will know on Friday if Scott will have to have surgery to place a permanent shunt and that surgery will be on Monday. "Praying for the best and hoping for another miracle."

Scotty's MRI results are back!!!!

TUMOR is GONE!!! Now just the recovery part and CT scan on Wednesday or Thursday to make sure that they can remove the EDT. God Bless!!!

Scotty's 2nd & 3rd Surgery

Scott was scheduled for his second surgery on Monday October 19th at 11a.m. He was really nervous this time around because, he knows more of what to expect. They have asked that we go in at 7a to check in & have his MRI than from there surgery. Scotty's surgery was 6 hrs long and he did well through his surgery. He didn't seem to be recovering as well though he was sleeping a lot & getting dizzy. Dr. Brockmeyer is concerned from the CT scan it shows that he has 2 pockets of air in his head and needs to place an EDT in to drain his brain. On Thursday morning he came in to tell us that he is actually going to have to do another surgery on Scotty that the CT scan shows there is still more of the tumor. He doesn't want to put it off another 3 months knowing that it is the tumor. So, Saturday Scotty had to have an emergency surgery. Which he did very well with and is making a great recovery. They have come into clamp his EDT so we are just crossing our fingers that they will be able to remove it soon. We are also still waiting to hear back from the MRI they did on Sunday after his 3rd surgery. We are all praying that we get good news from Dr. Brockmeyer.

Scotty's Birthday & his 3 month check up

September 29th Scotty turned 11 years old. Since he can't play football he has asked us for a guitar. How could we say no to that right? My family has a lot of talent you never know Scotty could have a real talent for music. Scotty was so surprised to see that he got the electric guitar on his Birthday he is a strong kid. On October 5th we went in for Scotty's follow up MRI and on October 8th we got the results from Doctor Brockmeyer. He said that the tumor was still there that when he did the first surgery that he went in blind with all the swelling. Now the swelling has gone down he can see that there is a lot of the tumor that still remains. He scheduled Scotty to have another surgery on October 19th. Not the news that we were all hoping to hear. We made sure that this week we would do a lot of activities as a family. My heart breaks as a mother the first thing any mom wants to do for their child is make it better and I can't do that. He is scared and hasn't been sleeping well since we got the news.

After Surgery

Scotty has come very far since his first surgery. His balance has gotten better and he wears a patch on each for 2 hrs a day to build up strength in his wandering eye. Dr. Hoffman say's he is optimistic and feels he will make a full recovery with his right eye as the swelling goes down. His vision is good 20/20 in his left and 20/25 in the right. His only issue with the wandering eye is that he sees double and his eyes get tired and burn. Scotty goes to physical therapy once a week and his Physical Therapist name is Hope Jensen she is wonderful. Scotty is going to school only part time for now. He isn't allowed to go out for recess he has to follow the 2 feet rule "both feet on the ground." He has gone to watch him Team play football and cheers his Team on during their games. He truly misses not playing football this year but, he says "every football player has a story." He is just the strongest kid and has the best attitude. I will admit though he has been moody at times & his sisters Kierra & Kellie put up with a lot of his crap but, they still love him.

Scotty's Battle

Scotty was first diagnosed with his tumor on July 28th,2009. What started with a headache ended up being our worst night mare. Scotty had complained of headaches from time to time but, we didn't think much of it. How often do kids get headaches & we just give them motrin. Well, on July 28th it got worse. My husband called me at work to tell me Scotty was vomiting & he was concerned and that we needed to get him in immediately. I rushed home & we took him to emergency at Alta View Hospital. When we arrived Scotty's right arm had gone numb & doctors immediately came into his room and started him on morphine through an IV. Scotty got worse and became even more nauseated. The Doctor recommended we do a cat scan and we agreed. When the doctor came in with the nurse I could tell it wasn't good news. The Doctor advised us Scotty had a mass in his head about 5-6 cm big and wanted him transferred to Primary Children's Hospital immediately. When we arrived at Primary we were greeted by one of the surgeons. They were very kind and treated us very good considering what we were just told. They took Scotty in for a MRI where he came out with a EDT in his head to drain the fluid from his brain. We than met with Dr. Douglas Brockmeyer who advised us Scotty's tumor was massive & they needed to get in and do surgery immediately he wasn't sure if and what the tumor was attached too. Scott and I stood there helpless not knowing what to say or do and at the same time my heart hurt. Scotty had surgery the very next day 07-29-09 he was in there for 4 1/2 hrs. When Dr. Brockmeyer was finished he advised us that he removed as much of the tumor as he could. He advised that there was a portion left on his brain stem. He also advised us that he went in blind & with all the swelling he wouldn't know if the surgery worked or not until the swelling went down. Scotty was in the hospital for 14 day's. He was the strongest kid & is our Hero. He was released from the hospital with request that he only go to school 2 hrs a day & do physical therapy. He also needed to see an opthamologist Dr. Hoffman. The swelling from his brain pressed up against his optic nerve witched caused him to have a wandering eye.